Tremor-cancelling spoon for Parkinson's tremors(liftlabsdesign.com)
liftlabsdesign.com
Tremor-cancelling spoon for Parkinson's tremors
https://www.liftlabsdesign.com/
19 comments
Things like this are just a total blessing to people who need them and its awesome to see affordable technology like this taking place for people who can't even take part in the one of the most important functions of life. A lot of people are talking about if there is a big enough market/etc, we should probably assume the creator only wants to cover his cost since this invention was probably created by people who had family suffering from such a thing. Any profits would probably make the inventor(s) delighted.
I'm a little late commenting, but I developed a Windows app [1] that does exactly this for the mouse. It basically applies some fancy FIR filters to the x and y deltas.
[1] www.steadymouse.com
Wonderful; like OS X's "Slow Keys" but for the mouse pointer instead. This should be included as a built-in accessibility option in every operating system.
Have you thought about open-sourcing your implementation to encourage others to take a jab at it and port it to other platforms?
Have you thought about open-sourcing your implementation to encourage others to take a jab at it and port it to other platforms?
Hey, thanks! I'd also love to see it built in to operating systems someday. It'd be much cleaner and easier to implement there as well. When I wrote steadymouse I had two choices: 1) Implement a driver (which is overkill if you ask me) or 2) Use a mouse hook in a very convoluted way (As is, the low level mouse hook doesn't easily let you "modify and pass on" mouse data). Applying DSP math to the mouse would be much easier within the OS.
As for open sourcing the project, I've considered it and may eventually go that route. I'd like to clean it up first though and have the time to stay a part of the active development...maybe it's just hard for me to let go.
Thanks for the product, and thanks for considering to make it opensource. If you decide to go that route and have issues deciding what license to use, etc, please let me know, I can put you in touch with an expert in licensing, etc who can help you for free. And contribute code, ofc.
Wow, I really appreciate that!
/I must admit, the community here really impresses me with comments like this.
This is awesome!
My brother has downsyndrome and struggles with muscle control. When he eats he tremors quite a bit losing food on his plate forcing him to take a desperate eat fast approach to his meals. He has gone through quite a bit of muscle therapy to help. Needless to say, I will be buying this for him and can't wait to see what other types of people find an improvement in their lives with this product.
This is wonderful!
I have to wonder - why is it that it took so long to come up with such a simple idea for such an obvious problem?
I'd like to blame it on the "get rich, web app startup" mentality, but really, that's a fairly recent thing.
Perhaps this is a harder problem than it seems? Or is it true that all our new inventors are chasing riches?
I have to wonder - why is it that it took so long to come up with such a simple idea for such an obvious problem?
I'd like to blame it on the "get rich, web app startup" mentality, but really, that's a fairly recent thing.
Perhaps this is a harder problem than it seems? Or is it true that all our new inventors are chasing riches?
Two things to consider:
1) They claim they tested 100 algorithms over 2 years before they settled on one to bring to market. That's pretty much the definition of 'harder than it looks'.
2) This product requires sufficient cheap, powerful, and small accelerometers, processors, batteries, and sensors. All of which have really only come together in the last 4-5 years. Any engineer who made the connection in the 90s might have at most whipped together a prototype before doing the calculations and realizing that that it just wasn't viable.
Conceptually, it's simple. I've personally seen 2 senior year engineering student design projects that more or less do the same concept - do feedback control on the spoon. They even had -ok- looking prototype demos. You could look at their spoon vibrating less, and you could look at their metrics, and see their claims, but then you would really look at it, and think 'man, that 40% reduction in amplitude sure looks sweet, but does it actually do enough?'.
I can straight up tell you that nearly all 'simple' ideas become retarded complicated when they moosh up against a human being (or mother nature...), and 'complicated' ideas become even worse.
1) They claim they tested 100 algorithms over 2 years before they settled on one to bring to market. That's pretty much the definition of 'harder than it looks'.
2) This product requires sufficient cheap, powerful, and small accelerometers, processors, batteries, and sensors. All of which have really only come together in the last 4-5 years. Any engineer who made the connection in the 90s might have at most whipped together a prototype before doing the calculations and realizing that that it just wasn't viable.
Conceptually, it's simple. I've personally seen 2 senior year engineering student design projects that more or less do the same concept - do feedback control on the spoon. They even had -ok- looking prototype demos. You could look at their spoon vibrating less, and you could look at their metrics, and see their claims, but then you would really look at it, and think 'man, that 40% reduction in amplitude sure looks sweet, but does it actually do enough?'.
I can straight up tell you that nearly all 'simple' ideas become retarded complicated when they moosh up against a human being (or mother nature...), and 'complicated' ideas become even worse.
The idea is actually not simple, and as I've commented elsewhere it turns out it is actually worthy of patent protection, and this particular company couldn't have even brought to market without it. I know it seems incredible, but that is the reality.
Moreover, if they had not gotten patent protection on it and then a grant (from how I read their email to me on this subject, included in my other comment), they wouldn't have even been able to finish developing it.
If they hadn't developed it, but only described the idea, people would have probably thought they were nuts.
Moreover, if they had not gotten patent protection on it and then a grant (from how I read their email to me on this subject, included in my other comment), they wouldn't have even been able to finish developing it.
If they hadn't developed it, but only described the idea, people would have probably thought they were nuts.
Many things are obvious once you've seen them done.
I realize that, and know my comment sounds naive - but.
We have people who study earthquakes, and gyroscopes, and nerve disorders. And we have the internet so they can all easily share ideas & research.
Is this idea REALLY so "un-obvious"?
We have people who study earthquakes, and gyroscopes, and nerve disorders. And we have the internet so they can all easily share ideas & research.
Is this idea REALLY so "un-obvious"?
Do we have people who study all three?
It is, in my opinion, an obvious solution. Or at least it should be for anyone who took control theory classes (or learned it by itself). So I guess is that a/ people who know engineering don't know what medical problems are, and (more likely) b/ there's a long, long way from an idea to working product.
Don't mean to put too fine a point on it, but could you give me any example of a consumer solution throughout history that you would not class as obvious? I'm wondering what your standards are.
Ok, it was obvious, and now someone's done it. So what?
Be careful not to confuse "problems" with "solutions" (you saw my other comment :)
It is wonderful isn't it?
My opinion as a biomedical engineer is that there is a lack of exposure of these real problems because, really, how many people know someone with Parkinsons? But when companies like this solve them in such an elegant way they can appear pretty cool and dare I say "sexy".
So its an obvious solution, but I wouldn't say its an obvious problem. The list of problems is probably huge and a forum for capable engineers and designers to browse and help solve them would be awesome.
My opinion as a biomedical engineer is that there is a lack of exposure of these real problems because, really, how many people know someone with Parkinsons? But when companies like this solve them in such an elegant way they can appear pretty cool and dare I say "sexy".
So its an obvious solution, but I wouldn't say its an obvious problem. The list of problems is probably huge and a forum for capable engineers and designers to browse and help solve them would be awesome.
" forum for capable engineers and designers to browse and help solve them would be awesome."
That is an awesome idea - it seems like I've seen/heard of something similar, but if not, I'm a web programmer who could bang that together rather quickly.
Before I do, has anyone heard of an existing site/forum?
That is an awesome idea - it seems like I've seen/heard of something similar, but if not, I'm a web programmer who could bang that together rather quickly.
Before I do, has anyone heard of an existing site/forum?
There's sub reddit[1] i tried for some time , but didn't really stick to it.
The hard part here is building a community of people who will contribute problems and content around problems. This might be bootstrapped at the beginning either by putting effort in searching the web for such problems, and asking experts around the web about problems, and slowly building a database.
Such content could be a pull for some groups of people, many of them will be more interested in solutions ,but some will be a source of more problems.
And there's also the question of exposing the information in such a way to encourage innovation and not just reading.Not sure what the right way to do this, but it's interesting.
It's not easy to create a high quality content/community site around this , but when solved well this could be a really valuable site.
[1]http://www.reddit.com/r/realproblemsolvers
The hard part here is building a community of people who will contribute problems and content around problems. This might be bootstrapped at the beginning either by putting effort in searching the web for such problems, and asking experts around the web about problems, and slowly building a database.
Such content could be a pull for some groups of people, many of them will be more interested in solutions ,but some will be a source of more problems.
And there's also the question of exposing the information in such a way to encourage innovation and not just reading.Not sure what the right way to do this, but it's interesting.
It's not easy to create a high quality content/community site around this , but when solved well this could be a really valuable site.
[1]http://www.reddit.com/r/realproblemsolvers
It sounds like an obvious solution doesn't it ;) ?
The key to making this work would be an adequate capture of the context as well as a description of the problem. In the product design world we use "Personas" as a vehicle for packaging problems into descriptions of user needs. They give the user a demographic and allow the designer to imagine that person and how they might use a potential solution. This allows to designer to avoid imposing their own preconceptions or doubts onto the context or idea before it is even a mere wisp of a concept.
If you can capture this in a spam free, usable and elegant website I reckon you'll be on to something. Not sure how you'd monetise the output, but then that's why I've never finished the 50 or so website projects I started.
The key to making this work would be an adequate capture of the context as well as a description of the problem. In the product design world we use "Personas" as a vehicle for packaging problems into descriptions of user needs. They give the user a demographic and allow the designer to imagine that person and how they might use a potential solution. This allows to designer to avoid imposing their own preconceptions or doubts onto the context or idea before it is even a mere wisp of a concept.
If you can capture this in a spam free, usable and elegant website I reckon you'll be on to something. Not sure how you'd monetise the output, but then that's why I've never finished the 50 or so website projects I started.
not everything needs to be monetized :-)
I'll look these comments & site over and discuss with friends a bit; obviously, creating a site is the easy part
I'll look these comments & site over and discuss with friends a bit; obviously, creating a site is the easy part
This sort of filtering should also be put in a mouse driver
Apparently user gottebp did just that: https://news.ycombinator.com/item?id=7753993
As a sufferer of early onset parkinson's, it's great to see products like this being developed. Hats off.
I would like to "sponsor" a few of these for folks. Does anyone know of a resource, non-profit, or...something that can help facilitate that?
Their homepage says they match dollar for dollar for those in need. Get in touch with them.
My grandfather had parkinsons and this would have been a true blessing to him. I watched in frustration many times as he had a hard time doing tasks like this.
Seeing this kind of GOOD being invented makes me happy. This made my day.
Seeing this kind of GOOD being invented makes me happy. This made my day.
I wonder why wouldn't be possible to use some kind of passive method for tremor cancellation, like a miniature version of a steadicam. http://en.wikipedia.org/wiki/Steadicam
I like the idea, but I think the spoon is a bit shallow. It would be hard to eat soup with it.
There's multiple attachments for the spoon. One of them might be a larger spoon.
Well done, Really great work!
[deleted]
Let's entertain the notion, prevalent here, that this idea itself (like all ideas themselves) is worth absolutely nothing, and that any one of the teams in the world who have access to gyroscopes, servos, and microchips, should have the right to reproduce this hack at unit cost and drive these guys out of business. Its cost is listed at $295.00[1] and this is their only product. It's huge compared to what the best facilities and teams in the world can produce to the same specifications, relatively unaesthetic as a utensil in its present form as compared to what a better-funded team can produce in a matter of weeks, and is clearly first-generation. They have no brand in the medical space. It is an eating utensil, yet it is not waterproof.
It is, however, patented.[2] This single fact allows this company (in its present form) to exist, to have done its research, to have raised its investment, and to bring their prototype in the form we currently see to market, at the price that it is currently listed at.
But patents are "wrong" and "stifle innovation".
Granted it's pretty obvious that this makes a huge difference in people's lives. So perhaps we should leaven our desire that their margin disappear, with hoping that more teams are somehow magically and irrationally in a position to do the world's R&D before losing their shirts as their margins disappear from under them. Having seen the size of this thing, the fact that it's not waterproof, the lack of an existing trusted brand-name behind the product, and a lack of any distribution except their web site (see their FAQ) shows that there is no way that is the best that any team in the world can build now that they've seen how it's done. Therefore, lacking protection, this team would no longer be competitive in a short number of weeks/months.
We can, however, agree that it is good that this has been made. So, how shall we reconcile this? Well, perhaps we should simply hope that funding, such as they have raised, would magically continue to be available even without any any margins that are guaranteed in the results (should they succeed in embodying their claims), which would allow the investors to recoup their investment. In short, we need investors to be crazy enough to keep funding innovations such as this one, while we remove the protections that would justify that craziness. Basically, we would have to hope that investors never catch on.
This is crucial for our purposes, as otherwise ideas such as this would not exist. Someone could have had this idea in 1999 or 1989. But without the investment, it might have stayed at the "worth-nothing" idea stage, rather than what we might call the "worth-nothing-but-has-now-actually-beend-developed-and-actually-been-built-and-proven-and-it's-no-longer-a-pipe-dream" worth-nothing stage. Which the rest of us deserve to access for free without investing anything.
There is an analogy to be made here with Tesla, who died nearly penniless: his meager earnings had come from his patent royalties. Imagine if we had the ability to rewrite history and take even this away from him, along with the food from his stomach and equipment from his labs, so that Edison and the rest of the world's teams would have full access to all of his inventions, working or impractical, without any protection. Imagine what progress that would have led to.
In summary:
1- ideas like this deserve no patent protection
2- teams should prove incredibly speculative techniques such as this for free and with no compensation or protection
3- investors should continue to invest in such ideas forever, even after it becomes abundantly clear that there is no way to recoup the investment in such a fledgling idea.;
</sarcasm>
Just kidding!! Phew. I hope we can all agree how ridiculous the above position would be. It's great that these guys brought their patented, high-margin product to the world. All this could have been done in 1984 - 40 years ago - if someone had had the 'wortheless' idea then -- and we would all have access to it today.
It took a team's phenomenal genius and dedication today to bring this to market, and the whole world will have it soon - unlike any of the Idea Sunday ideas that have no such protection, were never fully developed, and for which the entire program was crapped.
Here's to sane patents and to the progress they bring!
[1] http://store.liftlabsdesign.com/ $ 295.00. Note that my estimated margin at this price: (for copycat) 98.64% margins - ex assumed "worthless" idea - assuming a COGS at scale of $4, which is enough for several batteries, gyroscopes, microchips, cases, what have you. If we assume a $20 cost of goods that margin shrinks to 93.22% gross profit, again excluding the idea (which we assume is "worthless") or its development (which we assume the world should have access to for free, now that they've proven it.)
[2] http://www.cnet.com/news/smart-spoon-helps-stabilize-parkins...
It is, however, patented.[2] This single fact allows this company (in its present form) to exist, to have done its research, to have raised its investment, and to bring their prototype in the form we currently see to market, at the price that it is currently listed at.
But patents are "wrong" and "stifle innovation".
Granted it's pretty obvious that this makes a huge difference in people's lives. So perhaps we should leaven our desire that their margin disappear, with hoping that more teams are somehow magically and irrationally in a position to do the world's R&D before losing their shirts as their margins disappear from under them. Having seen the size of this thing, the fact that it's not waterproof, the lack of an existing trusted brand-name behind the product, and a lack of any distribution except their web site (see their FAQ) shows that there is no way that is the best that any team in the world can build now that they've seen how it's done. Therefore, lacking protection, this team would no longer be competitive in a short number of weeks/months.
We can, however, agree that it is good that this has been made. So, how shall we reconcile this? Well, perhaps we should simply hope that funding, such as they have raised, would magically continue to be available even without any any margins that are guaranteed in the results (should they succeed in embodying their claims), which would allow the investors to recoup their investment. In short, we need investors to be crazy enough to keep funding innovations such as this one, while we remove the protections that would justify that craziness. Basically, we would have to hope that investors never catch on.
This is crucial for our purposes, as otherwise ideas such as this would not exist. Someone could have had this idea in 1999 or 1989. But without the investment, it might have stayed at the "worth-nothing" idea stage, rather than what we might call the "worth-nothing-but-has-now-actually-beend-developed-and-actually-been-built-and-proven-and-it's-no-longer-a-pipe-dream" worth-nothing stage. Which the rest of us deserve to access for free without investing anything.
There is an analogy to be made here with Tesla, who died nearly penniless: his meager earnings had come from his patent royalties. Imagine if we had the ability to rewrite history and take even this away from him, along with the food from his stomach and equipment from his labs, so that Edison and the rest of the world's teams would have full access to all of his inventions, working or impractical, without any protection. Imagine what progress that would have led to.
In summary:
1- ideas like this deserve no patent protection
2- teams should prove incredibly speculative techniques such as this for free and with no compensation or protection
3- investors should continue to invest in such ideas forever, even after it becomes abundantly clear that there is no way to recoup the investment in such a fledgling idea.;
</sarcasm>
Just kidding!! Phew. I hope we can all agree how ridiculous the above position would be. It's great that these guys brought their patented, high-margin product to the world. All this could have been done in 1984 - 40 years ago - if someone had had the 'wortheless' idea then -- and we would all have access to it today.
It took a team's phenomenal genius and dedication today to bring this to market, and the whole world will have it soon - unlike any of the Idea Sunday ideas that have no such protection, were never fully developed, and for which the entire program was crapped.
Here's to sane patents and to the progress they bring!
[1] http://store.liftlabsdesign.com/ $ 295.00. Note that my estimated margin at this price: (for copycat) 98.64% margins - ex assumed "worthless" idea - assuming a COGS at scale of $4, which is enough for several batteries, gyroscopes, microchips, cases, what have you. If we assume a $20 cost of goods that margin shrinks to 93.22% gross profit, again excluding the idea (which we assume is "worthless") or its development (which we assume the world should have access to for free, now that they've proven it.)
[2] http://www.cnet.com/news/smart-spoon-helps-stabilize-parkins...
It's a highly regulated device. It's not going to be cheap, even without patents. Just look at hearing aids.
Let's say they didn't have a patent.
You'd need a significant investment, so you couldn't produce it at unit cost.
There's development. A good engineer costs what ... 200k? Including stuff like taxes, overhead, etc. Let's say you need several (because there's the control systems, hardware design, casing, manufacture, etc). You'll need supplies.
Then you'll need testing, legal, etc. You'll need to set up manufacturing (China? A US shop? Let's assume you're not building your own plant).
Complete ass-pull guess - it's $10 million to bring a clone to market, in the US. It's a medical assistive device (is that the right term?) - you can't do it cheaply and legally.
So there's ~600k (~1/500) people in the US with Parkinsons. Maybe 10% want your spoon (because there's other spoons, or some have treatment that makes your spoon useless, or they are too stubborn to use it, or they just don't want it). That's 60k.
So you're looking at maybe $160 overhead per unit. Add $50 sales cost, and $50 to manufacture it (medical device), and you're not looking at a cheap spoon.
Yes, going international could make it cheaper. Presumably, the company selling this spoon will also get cheaper with time.
I'm also sure that even with patents, there will be clones. People will come up with similar ideas, and make them just different enough to squeak past, legally speaking. But given the high costs of developing assistive devices, it's not going to be profitable for every man and his dog to make a clone. So you'll go from a monopoly to a near-monopoly. Just because there's some competition doesn't mean that the price will dramatically drop - you need a lot of competition with identical products for the price to go to unit cost.
Let's say they didn't have a patent.
You'd need a significant investment, so you couldn't produce it at unit cost.
There's development. A good engineer costs what ... 200k? Including stuff like taxes, overhead, etc. Let's say you need several (because there's the control systems, hardware design, casing, manufacture, etc). You'll need supplies.
Then you'll need testing, legal, etc. You'll need to set up manufacturing (China? A US shop? Let's assume you're not building your own plant).
Complete ass-pull guess - it's $10 million to bring a clone to market, in the US. It's a medical assistive device (is that the right term?) - you can't do it cheaply and legally.
So there's ~600k (~1/500) people in the US with Parkinsons. Maybe 10% want your spoon (because there's other spoons, or some have treatment that makes your spoon useless, or they are too stubborn to use it, or they just don't want it). That's 60k.
So you're looking at maybe $160 overhead per unit. Add $50 sales cost, and $50 to manufacture it (medical device), and you're not looking at a cheap spoon.
Yes, going international could make it cheaper. Presumably, the company selling this spoon will also get cheaper with time.
I'm also sure that even with patents, there will be clones. People will come up with similar ideas, and make them just different enough to squeak past, legally speaking. But given the high costs of developing assistive devices, it's not going to be profitable for every man and his dog to make a clone. So you'll go from a monopoly to a near-monopoly. Just because there's some competition doesn't mean that the price will dramatically drop - you need a lot of competition with identical products for the price to go to unit cost.
No, a fork that responds to motion is not a highly regulated device.
Patent 08308664 - Tremor stabilizing system for handheld devices United States
Assignees: The regents of the University of Michigan.
Too smug, did not read.
I didn't downvote you despite my almost reflexive tendency to downvote posts bitching about being downvoted.
That said, I was strongly inclined to ding you for the sarcasm. Any point you might have been trying to make is obscured by the cloud of superiority and smugness your tone radiates, and, personally, I find that both off-putting and un-constructive. You could most assuredly use this invention as a means of starting a discussion about crap patents — a position with which I probably even agree in this instance — without burying your point beneath your invective.
That said, I was strongly inclined to ding you for the sarcasm. Any point you might have been trying to make is obscured by the cloud of superiority and smugness your tone radiates, and, personally, I find that both off-putting and un-constructive. You could most assuredly use this invention as a means of starting a discussion about crap patents — a position with which I probably even agree in this instance — without burying your point beneath your invective.
The fact that one of the responses, ronaldx, completely agrees with the point that I put in sarcasm, stating "The problem is that your sarcastic position sounds pretty good to me", shows that while the position seems smug and superior to you, it is actually a reasonable one around here.
The sarcastic part literally sounds pretty good to people here, and two posters have expressed agreement with it.
And look at the result. We have two very good comments agreeing with the sarcastic part (or denying its premise), and which we can now turn to.
The sarcastic part literally sounds pretty good to people here, and two posters have expressed agreement with it.
And look at the result. We have two very good comments agreeing with the sarcastic part (or denying its premise), and which we can now turn to.
Again, I'm not saying your position is wrong. I'm saying that your point is buried beneath your sarcasm and your ceaseless series of edits and revisions.
rosser: please bear in mind that while you are saying "I'm not saying your position is wrong", two respondents actually agree with the position taken in the marked "sarcastic part" :)
so this certainly identifies an avenue for discussion, even if you do not prefer this way of bringing it up.
so this certainly identifies an avenue for discussion, even if you do not prefer this way of bringing it up.
Please keep in mind what the poster is saying then, despite your position being worthy of discussion your tone is stifling enough as to make further discussion unpalatable.
I believe it is the facts in this case that make the discussion unpalatable for certain posters.
For example, separately, I actually wrote to this company during the comment thread, and received a reply. I found their reply very informative and posted it to the main thread (here: https://news.ycombinator.com/item?id=7753308) with a simple statement which nobody could find objectionable. It is my impression that someone nevertheless managed to find the facts themselves objectionable.
For example, separately, I actually wrote to this company during the comment thread, and received a reply. I found their reply very informative and posted it to the main thread (here: https://news.ycombinator.com/item?id=7753308) with a simple statement which nobody could find objectionable. It is my impression that someone nevertheless managed to find the facts themselves objectionable.
What "facts"? The fact that it wasn't any company research, but actually university-funded? The fact that the inventor was doing a PhD, not working for free?
Yes, those facts among others. If anything these facts imply he "wouldn't have needed" his patents, in order to get funded and build the thing.
I suspect if you tried to copy their idea it'll take you as much time as it took them if you want to match their algorithms. Meanwhile they're earning money and popularity because they were the first to market.
You might even find a better algorithm or at least match theirs, which adds another competitor to the market. In the end everyone (especially the consumer) wins.
Not a very good defense of patents to be honest.
-----
Also, this is not an instance of crap patents (rounded corners anyone?) which are the controversial ones. If I can copy your invention without any effort just by looking at it... is it even worth to grant the patent?
Patents are a means to encourage companies to share trade secrets, not a tool to turn them into monopolies. If your trade secret is not secret, why would the people (remember the governments, i.e. the people, are the ones granting patents) grant you any privilege so you would disclose what is already public and/or obvious?
OTOH, it's in the people's interests that Lift Labs share their data (which algorithms they tried, their performance, etc.) so a patent makes sense in this case. Patenting rounded corners? Not so much.
You might even find a better algorithm or at least match theirs, which adds another competitor to the market. In the end everyone (especially the consumer) wins.
Not a very good defense of patents to be honest.
-----
Also, this is not an instance of crap patents (rounded corners anyone?) which are the controversial ones. If I can copy your invention without any effort just by looking at it... is it even worth to grant the patent?
Patents are a means to encourage companies to share trade secrets, not a tool to turn them into monopolies. If your trade secret is not secret, why would the people (remember the governments, i.e. the people, are the ones granting patents) grant you any privilege so you would disclose what is already public and/or obvious?
OTOH, it's in the people's interests that Lift Labs share their data (which algorithms they tried, their performance, etc.) so a patent makes sense in this case. Patenting rounded corners? Not so much.
>I suspect if you tried to copy their idea it'll take you as much time as it took them if you want to match their algorithms.
How long do you think it took them to get to just the current, non-waterproof (eating utensil!) stage? I invite you to write down a guess before continuing to read this comment.
http://leadersinheels.com/tech/interview-anupam-pathak-found... states "The entire process took about three years from start to finish."
And whereas you open your comment "I suspect if you tried to copy..." but I hope you can extend that "you" to 3 years - or even six months - of Samsung, G.E., Roche, or Eli Lilly copying their prototype. Meanwhile, six months from now their prototype still won't be waterproof, and will still be the size it is now.
Regarding the part after your ------:
The problem is that what you call the "controversial" part is precisely the type of "idea-only" thing that is at issue here. If you're a product engineer for G.E. you can literally copy this invention in 6 months given nothing more than a budget of $1M and this video - literally zero other information.
At $295 that equates to 3389 units sold worldwide to generate that in gross revenue. (Meanwhile "Approximately 60,000 Americans are diagnosed with Parkinson's disease each year" according to http://www.pdf.org/en/parkinson_statistics).
If Eli Lilly had the right to do it, writing that check would be a no-brainer. How does Eli LIlly's manufacturing, distribution, and credibility in the medical space as well as access to care providers and brand name, relate to "Lift Labs"'s? If Eli Lilly were allowed to write that check and come onto market, six months from now Lift Labs would be a footnote.
Instead Lift Labs is afforded the sole right to provide all 60,000 sufferers detected every year, and every existing sufferer, with their solution, as well as to license it to Eli Lilly or any other company it wants.
This is progress in action.
How long do you think it took them to get to just the current, non-waterproof (eating utensil!) stage? I invite you to write down a guess before continuing to read this comment.
http://leadersinheels.com/tech/interview-anupam-pathak-found... states "The entire process took about three years from start to finish."
And whereas you open your comment "I suspect if you tried to copy..." but I hope you can extend that "you" to 3 years - or even six months - of Samsung, G.E., Roche, or Eli Lilly copying their prototype. Meanwhile, six months from now their prototype still won't be waterproof, and will still be the size it is now.
Regarding the part after your ------:
The problem is that what you call the "controversial" part is precisely the type of "idea-only" thing that is at issue here. If you're a product engineer for G.E. you can literally copy this invention in 6 months given nothing more than a budget of $1M and this video - literally zero other information.
At $295 that equates to 3389 units sold worldwide to generate that in gross revenue. (Meanwhile "Approximately 60,000 Americans are diagnosed with Parkinson's disease each year" according to http://www.pdf.org/en/parkinson_statistics).
If Eli Lilly had the right to do it, writing that check would be a no-brainer. How does Eli LIlly's manufacturing, distribution, and credibility in the medical space as well as access to care providers and brand name, relate to "Lift Labs"'s? If Eli Lilly were allowed to write that check and come onto market, six months from now Lift Labs would be a footnote.
Instead Lift Labs is afforded the sole right to provide all 60,000 sufferers detected every year, and every existing sufferer, with their solution, as well as to license it to Eli Lilly or any other company it wants.
This is progress in action.
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The problem is that your sarcastic position sounds pretty good to me.
The product is naturally high margin because there is a small, niche market. The first mover has a massive advantage, if they do a good enough job. It's unlikely that a copycat competitor would challenge someone in a good position, unless they could provide something cheaper or better.
Patents don't change this, but they do allow the patent holder to do a poor job, that doesn't fully reach people who need this product, and allows them to stifle competition who might be able to develop the idea further.
The product is naturally high margin because there is a small, niche market. The first mover has a massive advantage, if they do a good enough job. It's unlikely that a copycat competitor would challenge someone in a good position, unless they could provide something cheaper or better.
Patents don't change this, but they do allow the patent holder to do a poor job, that doesn't fully reach people who need this product, and allows them to stifle competition who might be able to develop the idea further.
What do you think the gross unit margin is on a copy of Microsoft Office? (obv it's high). Would you consider that it is because it is a "small, niche market"?
What is the unit margin on a printed copy of a Finnish translation of Mark Twain's Huckleberry Finn which is now in the public domain? (Obviously very low). Is that because it is a "small, niche market"?
The view that whether a market is a) small, b) niche, determines price, clearly has its limits.
In formal terms, the price we are looking at is the "monopoly price". It maximizes the profits given a single supplier (as for Microsoft Office.)
If Microsoft Office were more niche, it may cost $20,000, e.g. for excel in use just by a few wall street firms and nobody else -- we are talking about a situation where the software itself is exactly the same -- whereas if it were even more mass market, it may have a lower price.
At the current price for Microsoft Office, it is a steal for Wall Street trading firms doing some quick rough calculations, whereas it is expensive for students and families. Nevertheless, it is set at the monopoly price.
If the product we were talking about were a utensil everyone would want to use, it may have a price at $99 or $50 or even $20, depending on the scale the monopolist wants to hit.
You are right that the price depends on the demand curve. But in a monopoly, it depends far less on the supply curve.
Your argument about the first mover's advantage is not specific enough - can you state your premise more specifically, especially for hardware, maybe given some non-protected innovative examples (such as Pebble versus the Samsung Gear watch)? Then we could discuss it.
Where you say "unlikely that a copycat competitor would challenge someone in a good position." Out of curiosity, would you consider Lift Lab's position currently "good" if it did not have any patent protection?
Finally, you are completely correct that patents allow the patent holder to do a "poor" job, that "doesn't fully reach people who need this product". In terms of execution, how close do you think to optimal is Lift Labs doing in terms of executing on its idea?
For both of the last two paragraphs you could look at these common questions for example: http://store.liftlabsdesign.com/pages/faqs
What is the unit margin on a printed copy of a Finnish translation of Mark Twain's Huckleberry Finn which is now in the public domain? (Obviously very low). Is that because it is a "small, niche market"?
The view that whether a market is a) small, b) niche, determines price, clearly has its limits.
In formal terms, the price we are looking at is the "monopoly price". It maximizes the profits given a single supplier (as for Microsoft Office.)
If Microsoft Office were more niche, it may cost $20,000, e.g. for excel in use just by a few wall street firms and nobody else -- we are talking about a situation where the software itself is exactly the same -- whereas if it were even more mass market, it may have a lower price.
At the current price for Microsoft Office, it is a steal for Wall Street trading firms doing some quick rough calculations, whereas it is expensive for students and families. Nevertheless, it is set at the monopoly price.
If the product we were talking about were a utensil everyone would want to use, it may have a price at $99 or $50 or even $20, depending on the scale the monopolist wants to hit.
You are right that the price depends on the demand curve. But in a monopoly, it depends far less on the supply curve.
Your argument about the first mover's advantage is not specific enough - can you state your premise more specifically, especially for hardware, maybe given some non-protected innovative examples (such as Pebble versus the Samsung Gear watch)? Then we could discuss it.
Where you say "unlikely that a copycat competitor would challenge someone in a good position." Out of curiosity, would you consider Lift Lab's position currently "good" if it did not have any patent protection?
Finally, you are completely correct that patents allow the patent holder to do a "poor" job, that "doesn't fully reach people who need this product". In terms of execution, how close do you think to optimal is Lift Labs doing in terms of executing on its idea?
For both of the last two paragraphs you could look at these common questions for example: http://store.liftlabsdesign.com/pages/faqs
Disliking patents doesn't mean I think ideas (and this idea in particular) are worthless -- the opposite, ideas like this are hugely valuable, and as you say, they can become even more valuable when they are shared and improved upon. As things stand today though, I agree with you that patents are a necessary evil in many cases for helping attract that initial investment.
If that really is the main role patents play, it seems like there ought to be a better way though. One that is more sustainable and less abhorrent than keeping a huge, increasingly unknowable set of mechanisms/solutions "you may not use" when solving problems. I am cautiously optimistic that something like widespread crowdfunding, along with with a better social safety (universal basic income?) that makes risk-taking easier, could possibly fill that role instead and make patents unnecessary. Then again, maybe I'm overly idealistic...
If that really is the main role patents play, it seems like there ought to be a better way though. One that is more sustainable and less abhorrent than keeping a huge, increasingly unknowable set of mechanisms/solutions "you may not use" when solving problems. I am cautiously optimistic that something like widespread crowdfunding, along with with a better social safety (universal basic income?) that makes risk-taking easier, could possibly fill that role instead and make patents unnecessary. Then again, maybe I'm overly idealistic...
Holy crap was I confused for a minute, I misread the title as "Tremor-canceling spoon for Pakistan's tremors." I was just thinking "there must be A LOT of earthquakes in Pakistan."
... Anyway this is a great invention, even if it's not intended to be used during earthquakes ;-)
... Anyway this is a great invention, even if it's not intended to be used during earthquakes ;-)
I made a point about the importance of patents for this invention, but it is better to receive it straight from the source: http://imgur.com/Q99L8V3
(the bottom just quotes my letter, already visible)
This product and company would not exist without patents on what amounts to an idea.
(the bottom just quotes my letter, already visible)
This product and company would not exist without patents on what amounts to an idea.
Huh? All your e-mail exchange proves is that he believed, at one point, patents were a good idea.
In fact, it doesn't even prove that: If a stranger approached me about my company's patents, you can bet I'd smile and nod say, "Yes, they're important", like he did -- regardless of what I actually believe.
Establishing a written record of anything else sounds like a great way to throw that investment -- valuable or not -- in the trash. Especially when the remark is made to someone like you who then turns around and posts it to the public!
As someone who both holds several patents and has actually seen this device in person, I think you're trying way too hard to craft your point.
(throwaway because my anti-procrast is on, oh well)
In fact, it doesn't even prove that: If a stranger approached me about my company's patents, you can bet I'd smile and nod say, "Yes, they're important", like he did -- regardless of what I actually believe.
Establishing a written record of anything else sounds like a great way to throw that investment -- valuable or not -- in the trash. Especially when the remark is made to someone like you who then turns around and posts it to the public!
As someone who both holds several patents and has actually seen this device in person, I think you're trying way too hard to craft your point.
(throwaway because my anti-procrast is on, oh well)
Of course the email isn't meant to prove anything, I was just curious how long his development time took. I only asked about the length of time of development, nothing else, he volunteered the extra information, which is that he would not have been able to raise any money without them (including what sounds like a research grant) and that it was crucial to getting to market at all (or whatever he said).
As it's all in the past, I don't see that this would help his patent case today in any way. ("Please uphold the patent, because I really needed it back when it was just an idea" doesn't seem a convincing reason to uphold a patent today, as they are now on the market.)
So I read the information he volunteered as stemming from his experience and perspective, rather than his interests.
I also see projects fail completely every day which could have succeeded with a minimum level of patent protection on their narrow inventions. So there may be a built-in survival bias, and you will not necessarily hear about these projects, which fail to raise even a preseed research grant "round" to complete development, but are abandoned isntead.
Page Rank was also patented by Larry Page. In stark contrast to the view presented on Hacker News, ideas are extremely worthwhile and patents are one of the most important tools any entrepreneur has for getting to market with real innovation, which is unsure and costly, and requires people to buy in at a pre-revenue stage.
The mechanism patents due this via is a full monopoly for a limited time. We can see this in the price set on this invention (that we're discussing), which is a monopoly price and will be upheld due to the fact that competitors are not allowed in the same space.
In countries that do not acknowledge these patents, a $79 equivalent could appear shortly. It can even be objectively better. Nevertheless, this is the price we pay for this invention to exist at all, and but for the patent system this invention would not exist at all. (In reality.)
As it's all in the past, I don't see that this would help his patent case today in any way. ("Please uphold the patent, because I really needed it back when it was just an idea" doesn't seem a convincing reason to uphold a patent today, as they are now on the market.)
So I read the information he volunteered as stemming from his experience and perspective, rather than his interests.
I also see projects fail completely every day which could have succeeded with a minimum level of patent protection on their narrow inventions. So there may be a built-in survival bias, and you will not necessarily hear about these projects, which fail to raise even a preseed research grant "round" to complete development, but are abandoned isntead.
Page Rank was also patented by Larry Page. In stark contrast to the view presented on Hacker News, ideas are extremely worthwhile and patents are one of the most important tools any entrepreneur has for getting to market with real innovation, which is unsure and costly, and requires people to buy in at a pre-revenue stage.
The mechanism patents due this via is a full monopoly for a limited time. We can see this in the price set on this invention (that we're discussing), which is a monopoly price and will be upheld due to the fact that competitors are not allowed in the same space.
In countries that do not acknowledge these patents, a $79 equivalent could appear shortly. It can even be objectively better. Nevertheless, this is the price we pay for this invention to exist at all, and but for the patent system this invention would not exist at all. (In reality.)
Heard about this on All Things Considered this week: http://www.npr.org/blogs/health/2014/05/13/310399325/a-spoon...
My grandfather has Parkinson's. My dad has slightly noticeable hand tremors - no diagnosis at this point. I haven't read up on the likelihood that I'll get it, but I assume that I'm at high risk.
That said, this looks pretty neat and seems like basically a spoon version of Canon AF lenses. Will definitely look into these for my grandpa :)
That said, this looks pretty neat and seems like basically a spoon version of Canon AF lenses. Will definitely look into these for my grandpa :)
Likewise, my grandfather most likely had Parkinson's towards the end of his life. My father has had essential / familial tremor for 3 decades or so.
I did at one point did check out my genetic risk factors as determined by 23 and Me, back when they provided trait mapping services. Turns out I have a higher than average lifetime risk.
It's all ugly shit. Even essential tremor is non-trivial. I'm glad innovations of all kinds are being made in this field.
I did at one point did check out my genetic risk factors as determined by 23 and Me, back when they provided trait mapping services. Turns out I have a higher than average lifetime risk.
It's all ugly shit. Even essential tremor is non-trivial. I'm glad innovations of all kinds are being made in this field.
No shit. ET is set off by everything - exercise, alcohol, caffeine, lack of sleep, etc. In a perverse way it forces you to stop addictions to stimulants, otherwise you can't help but look 50 years older in front of friends and family because your fingers shake nonstop.
I think some will remember the news story that Sergey Brin has the Parkinson's mutation. He is keen to fund technologies that makes progress in this field. That would indeed be welcome. Diagnosing Parkinson's with confidence with a specific authoritative test is no easy task. For my dad, the doctors cannot decide if it is essential tremor or Parkinson's.
I recall a post on HN which showed that our vocal signals have enough information to help wwith such diagnosis. Voice as carried by phone's now dont have the spectral resolution for this. However it might have enough bandwidth if voice is coded for that purpose. Seems like a worthy problem to take a stab at.
I think the corresponding NPR story https://news.ycombinator.com/item?id=7752627 was posted a few days ago but did not make the front page. So I am glad this made it.
I recall a post on HN which showed that our vocal signals have enough information to help wwith such diagnosis. Voice as carried by phone's now dont have the spectral resolution for this. However it might have enough bandwidth if voice is coded for that purpose. Seems like a worthy problem to take a stab at.
I think the corresponding NPR story https://news.ycombinator.com/item?id=7752627 was posted a few days ago but did not make the front page. So I am glad this made it.
This video left a deep impression on me:
https://www.youtube.com/watch?v=uBh2LxTW0s0
I didn't realize how this sort of tech can be so life changing (or life giving)
https://www.youtube.com/watch?v=uBh2LxTW0s0
I didn't realize how this sort of tech can be so life changing (or life giving)
That video is incredible to watch.
It is so amazing that I am slightly worried that it might be faked.
I really hope that this technology becomes an economically-viable and long-term means of helping parkinson's tremors.
It is so amazing that I am slightly worried that it might be faked.
I really hope that this technology becomes an economically-viable and long-term means of helping parkinson's tremors.
This is interesting, but IMHO, will not be as useful in most cases of Parkinson's disease.
1) Parkinsonian tremor is typically at rest or with distraction. When you actually engage in purposeful action, such as using a spoon, the tremor usually dampens or goes away.
2) The main problem in Parkinson's is actually "bradykinesia" or slowness of movement. A more accurate term, in my opinion, is slowness of motor planning, that is, the brain systems cannot process the information require to, and then generate, a plan of movement for the limbs fast enough. The spoon won't fix that.
3) Parkinsonian and other forms of tremor do have relatively safe and effective treatments in medications or deep brain stimulation implantation.
My thoughts are - this spoon, if it works and isn't a mechanical nightmare, would be useful in a limited subset of cases where the tremor resembles another condition known as essential tremor, where the tremor instead is an intention or action tremor, where purposeful activity amplifies the tremor. Even so, these would only be in those patients who cannot get deep brain stimulation surgery for some reason. The reason being that DBS, while brain surgery, once done, is the more elegant solution. I.e. your tremor goes away, rather than requiring a superficial "hack" like this spoon.
1) Parkinsonian tremor is typically at rest or with distraction. When you actually engage in purposeful action, such as using a spoon, the tremor usually dampens or goes away.
2) The main problem in Parkinson's is actually "bradykinesia" or slowness of movement. A more accurate term, in my opinion, is slowness of motor planning, that is, the brain systems cannot process the information require to, and then generate, a plan of movement for the limbs fast enough. The spoon won't fix that.
3) Parkinsonian and other forms of tremor do have relatively safe and effective treatments in medications or deep brain stimulation implantation.
My thoughts are - this spoon, if it works and isn't a mechanical nightmare, would be useful in a limited subset of cases where the tremor resembles another condition known as essential tremor, where the tremor instead is an intention or action tremor, where purposeful activity amplifies the tremor. Even so, these would only be in those patients who cannot get deep brain stimulation surgery for some reason. The reason being that DBS, while brain surgery, once done, is the more elegant solution. I.e. your tremor goes away, rather than requiring a superficial "hack" like this spoon.
This is such an HN reply. Tear everything to shreds. Who cares if it "would be useful in a limited subset of cases where the tremor resembles another condition known as essential tremor"? Seriously, no one is forcing you to buy one. Be happy that people who are sick get the dignity of feeding themselves back. This is only positive. This can only get better. FFS...
> Tear everything to shreds.
That's also called "constructive feedback" or "having something useful to say". OP offered his thoughts on the best cases where this technology could be applied while explaining how Parkinson actually works and how this limits the usefulness of this solution. If this is "such an HN reply", then this is also the kind of reply for which I come back to this site.
That's also called "constructive feedback" or "having something useful to say". OP offered his thoughts on the best cases where this technology could be applied while explaining how Parkinson actually works and how this limits the usefulness of this solution. If this is "such an HN reply", then this is also the kind of reply for which I come back to this site.
There is literally not a single sentence of "constructive feedback" in that post. Just a post being a typical HN complainer about how since it's not perfect it won't work. He did offer his thoughts on the "best cases" but he did it in the most typical dick head know-it-all way. There was nothing positive about his post when something like this is only positive. I'm shocked you come to this site for that type of comment when there are so many great comments that actually contribute and actually offer constructive feedback.
Lets just be clear... He recommended BRAIN SURGERY rather than a simple "hack" spoon.
Well, so would I. The spoon doesn't cure the symptoms.
I don't know the exact numbers, but I definitely feel like brain surgery carries a much higher risk with it than a new spoon. Some people might prefer not to take that risk, especially in cases of elderly people who may not be strong enough to survive surgery.
Well, so what? It seems to be a standard medical practice. It only sounds scary because it's new / we're used to have it sound scary in TV shows.
It also sounds expensive.
Brain surgery is very risky, invasive, and is only available to a subset of the population. Spoons are risk free.
A small amount of "constructive feedback" drowned out by the excessive pessimism that one can only find in HN comments. Let me also mention that we don't live in a world where everyone can(or even wants to) get brain surgery.
Excessive pessimism? All he said is that this "will not be as useful in most cases of Parkinson's disease" because <list of reasons>. For me this is clear thinking, not pessimism. If one is not able to handle this kind of feedback without going emotional, then one most certainly lives in the world of self-induced delusions.
I think of it as what is the overall benefit. For Parkinson's, the DBS will enable them to move and walk. Many advanced patients have tremor but can't move well enough to even use a spoon. To me, it seems like a solution that doesn't really see the forest for the trees.
Not that the spoon won't be useful in many situations, but I've seen other appliances - walkers with laser cues to try and improve the "freezing of gait" phenomenon, stomach tubes to try and get over the fluctuating levels of medications, all tried. They're nice, they're not invasive, they don't get used.
PD is complicated enough that solutions need to get a hold of the "big picture". For ET, it probably would have more of a role but still, what about writing, handling complex controls, etc? The spoon may fix a limited set of problems in all of this, but the bigger picture is what will get a bed bound or wheelchair bound patient back on their feet and doing all the things they need to do in daily life. There are better solutions available for this than just the spoon.
Not that the spoon won't be useful in many situations, but I've seen other appliances - walkers with laser cues to try and improve the "freezing of gait" phenomenon, stomach tubes to try and get over the fluctuating levels of medications, all tried. They're nice, they're not invasive, they don't get used.
PD is complicated enough that solutions need to get a hold of the "big picture". For ET, it probably would have more of a role but still, what about writing, handling complex controls, etc? The spoon may fix a limited set of problems in all of this, but the bigger picture is what will get a bed bound or wheelchair bound patient back on their feet and doing all the things they need to do in daily life. There are better solutions available for this than just the spoon.
I have essential tremor not quite as bad as shown in the video but bad enough I'd be interested in such a spoon. I've tried Propranolol, a common tremor treating medication, but found the side effects (drowsiness) too unpleasant for frequent use. I have an anesthesiologist friend who reminds me of the surgery option every so often but brain surgery doesn't strike me as elegant as much as serious and invasive. My friend assures me it would be fun, but I think he means for him, not me.
It is a personal decision whether to go to surgery or not, but our group really believes in letting patients known all the options.
The spoon only solves one problem - scooping up liquid food. One can argue that a fork or knife version could help with other food. It doesn't solve writing, playing instruments, typing. Shaving may be a little too delicate for something like this. DBS when done right solves all of this.
The problem with DBS is that best practices for implantation can vary widely, and I've seen it done really poorly, either with surgical groups with crappy experience w/ a lot of infections or poorly targeted leads that are many millimeters off the intended brain target. Our group prides ourselves in being pretty accurate most of the time, and with a complication rate of < 1%; of which I can't recall anyone who had a serious hemorrhage or death from this.
One thing to note, it's a stereotactic neurosurgical setup, which means our surgeon uses a skull mounted frame that inserts the implant in a 1 cm burr hole. It's not a typical open craniotomy where a large segment of the skull gets removed. So in a sense, yes, it is invasive, but no, it's not as invasive as full blown surgery.
We make sure all our patients who are candidates are aware of the risks and what the surgery entails going forward - both the eager beavers raring at the bit and the reluctant folks who are afraid of it. Many of them choose it, some of them don't. Some of them don't qualify, and that's every bit their decision.
The spoon only solves one problem - scooping up liquid food. One can argue that a fork or knife version could help with other food. It doesn't solve writing, playing instruments, typing. Shaving may be a little too delicate for something like this. DBS when done right solves all of this.
The problem with DBS is that best practices for implantation can vary widely, and I've seen it done really poorly, either with surgical groups with crappy experience w/ a lot of infections or poorly targeted leads that are many millimeters off the intended brain target. Our group prides ourselves in being pretty accurate most of the time, and with a complication rate of < 1%; of which I can't recall anyone who had a serious hemorrhage or death from this.
One thing to note, it's a stereotactic neurosurgical setup, which means our surgeon uses a skull mounted frame that inserts the implant in a 1 cm burr hole. It's not a typical open craniotomy where a large segment of the skull gets removed. So in a sense, yes, it is invasive, but no, it's not as invasive as full blown surgery.
We make sure all our patients who are candidates are aware of the risks and what the surgery entails going forward - both the eager beavers raring at the bit and the reluctant folks who are afraid of it. Many of them choose it, some of them don't. Some of them don't qualify, and that's every bit their decision.
Obviously something like brain surgery shouldn't be taken lightly, but I've had a family friend with tremors go through the process and the result is pretty amazing.
Went from pretty severe tremors to appearing basically completely cured.
This is a pretty good example: https://www.youtube.com/watch?v=uBh2LxTW0s0
Went from pretty severe tremors to appearing basically completely cured.
This is a pretty good example: https://www.youtube.com/watch?v=uBh2LxTW0s0
I completely agree. How someone decides to treat a condition is a deeply personal choice and I certainly didn't mean for my comment to be a recommendation for anyone else. Just that this spoon looks like a great option for a lot of people, me in particular.
Parkinsonian and other forms of tremor do have relatively safe and effective treatments in medications or deep brain stimulation implantation.
(My father has PD, my father-in-law had PD, I am a webmaster for a PD news/events/support groups website, and we are on the board for Struther's Parkinson's Center in Minneapolis. Which is to say, I live and breathe PD daily, in a very personal way, through relatives and close friends, as well as doctors who have dedicated their entire lives to PD. I see first-hand what PD medications and DBS surgeries do to people, over a period of many years.)
Your post is mind-boggingly misinformed and heartless. The "relatively safe and effective" medications you mention are not safe or very effective at all. They carry serious side effects for most patients and get less and less effective as time goes on. Even in the honeymoon years when the meds are still relatively effective, people still suffer in-between dosages, which is to say several times a day. The fact that people prefer being on them than being without them is a testament to how bad PD is, not how "safe" these meds are.
Likewise, the DBS surgery is quite risky - so much so that you have to be relatively young and healthy to get it, e.g. very few people over 75 are even eligible. Moreover, the improvements are typically in the 40%-80% range, far from the 100% you so happily imagine, so MOST patients who undergo DBS still have to take medication. The risk of stroke from the surgery is 2% and the risk of infection requiring another surgery is super high at 4%, to name just two. If that's not enough for you, the risk of DEATH from DBS surgery is around 0.5%. Moreover, it is NOT a one-time procedure. The batteries implanted in the chest run out, and then you get to have another surgery.
DBS, while brain surgery, is the more elegant solution. Your tremor goes away, rather than requiring a superficial "hack" like this spoon.
What a bad, cruel joke.
(My father has PD, my father-in-law had PD, I am a webmaster for a PD news/events/support groups website, and we are on the board for Struther's Parkinson's Center in Minneapolis. Which is to say, I live and breathe PD daily, in a very personal way, through relatives and close friends, as well as doctors who have dedicated their entire lives to PD. I see first-hand what PD medications and DBS surgeries do to people, over a period of many years.)
Your post is mind-boggingly misinformed and heartless. The "relatively safe and effective" medications you mention are not safe or very effective at all. They carry serious side effects for most patients and get less and less effective as time goes on. Even in the honeymoon years when the meds are still relatively effective, people still suffer in-between dosages, which is to say several times a day. The fact that people prefer being on them than being without them is a testament to how bad PD is, not how "safe" these meds are.
Likewise, the DBS surgery is quite risky - so much so that you have to be relatively young and healthy to get it, e.g. very few people over 75 are even eligible. Moreover, the improvements are typically in the 40%-80% range, far from the 100% you so happily imagine, so MOST patients who undergo DBS still have to take medication. The risk of stroke from the surgery is 2% and the risk of infection requiring another surgery is super high at 4%, to name just two. If that's not enough for you, the risk of DEATH from DBS surgery is around 0.5%. Moreover, it is NOT a one-time procedure. The batteries implanted in the chest run out, and then you get to have another surgery.
DBS, while brain surgery, is the more elegant solution. Your tremor goes away, rather than requiring a superficial "hack" like this spoon.
What a bad, cruel joke.
It's primarily intended for Essential Tremor, and actually most people don't elect to get DBS, and most don't qualify. Brain surgery is a risky procedure, and most individuals at 60+ have complicating factors that disqualify them from DBS. That's why so few operations have been done relative to the patient population size.
The device isn't a "hack", but a non-invasive way to deal with the problem.
The device isn't a "hack", but a non-invasive way to deal with the problem.
I think there's still a market for this device for people with essential tremor explicitly as opposed to Parkinson's, in that is the opposite and worsens with movement.
I have an ever so slight tremor that's worsened by the drugs I take but nowhere near bad enough for others to notice let alone be worth any treatment (so far) and I would occasionally kill for something like this to interact with my phone some days. Like this morning I was pinching and zooming up the wazoo to give my thumb a big enough target to hit without hitting things by accident while shaking around. Not sure it'd be that useful at the moment for fine tuned control but...
(oh look I'm having a hard time hitting the reply button now...)
I have an ever so slight tremor that's worsened by the drugs I take but nowhere near bad enough for others to notice let alone be worth any treatment (so far) and I would occasionally kill for something like this to interact with my phone some days. Like this morning I was pinching and zooming up the wazoo to give my thumb a big enough target to hit without hitting things by accident while shaking around. Not sure it'd be that useful at the moment for fine tuned control but...
(oh look I'm having a hard time hitting the reply button now...)
My father being an ET sufferer who has had a useless DBS device implanted that he now leaves disabled at all times, I concur with your assessment.
I have seen the dark side to some of this. I think a lot of hospitals are rushing into implants without a lot of experience, and are either mis-implanting them or not selecting the candidates appropriately. IT's similar to another procedure like carotid endarterectomy in that it's very surgeon-dependent; you don't want it done by someone who does less than 25-30 cases a year.
Most frustrating part for my father was the doctor claiming a historical 95% success rate and then never being willing to admit that my father'd drawn the lot of the 5%.
For anyone interested in seeing the before/after effects of DBS treatment, this video is pretty powerful:
http://www.youtube.com/watch?v=uBh2LxTW0s0
http://www.youtube.com/watch?v=uBh2LxTW0s0
I'm part of that small subset (there is intentional tremor, which actually made a Parkinsonism diagnosis a bit of a bitch).
That's not a rebuttal; the device would be far more useful for essential tremor or Huntington's-like disease sufferer's than it would be for the ordinary Parkinson's sufferer. (For some value of "ordinary", which is hard to come by in the Parkinson's world. Among my peer group - people I've actually met through neurologists, support services, and so forth - there have been a relatively small number of people who have a textbook presentation. But intentional tremor is not a frequent symptom.) The spoon (and similar devices) would be absolutely transformative for some people's quality of life, but putting the "Parkinson's" label on it won't get it into the right hands.
That's not a rebuttal; the device would be far more useful for essential tremor or Huntington's-like disease sufferer's than it would be for the ordinary Parkinson's sufferer. (For some value of "ordinary", which is hard to come by in the Parkinson's world. Among my peer group - people I've actually met through neurologists, support services, and so forth - there have been a relatively small number of people who have a textbook presentation. But intentional tremor is not a frequent symptom.) The spoon (and similar devices) would be absolutely transformative for some people's quality of life, but putting the "Parkinson's" label on it won't get it into the right hands.